CT scan Images 4 months after CVR surgery for Sagittal Craniosynostosis

It is post- op day 133! It's hard to believe its been 4 months (and 10 days to be exact) since Ryk's Cranio Surgery and she is doing great! We had our first post-op CT scan today and I am delighted to say everything looked good! Here is a look at pictures of her head and her skull! UPDATE: FOR MORE CT SCAN PICTURES CLICK HERE

At RyK's Neuro appointment her doctor said that the soft spots that the neurosurgeons created during surgery have already begun to close. That made me a little nervous. However, she assured me that everything should be okay.  Just because they are closing already doesn't mean that Ry's head won't still have room for her brain to grow. That was the best news we could have received!!! She recommended that we come back in year to check- in and for them to feel her head.I also learned that her metopic suture had already closed by the time we had the first ct scan, at around 10 months old. If you look at the image there is no jagged line down her forehead which means it had already fused. I have no idea when exactly that happened, but I am thankful that section of her head didn't need to be reconstructed as well. Luckily for us her skull was successfully corrected and now will also allow her to have a more normal headshape!  THE BEST PART IS NO MORE CT SCANS UNTIL RYK IS AROUND 4 YEARS OLD! So cross your fingers that we don't have to go under any more anesthesia or need to visit the radiology department again anytime soon!

Rylen was still asleep after CT scan from her sedation. Which was a total surprise because the 3 times we had anesthesia before that she immediately woke up screaming and pissed off! Took her a little less than 10 minutes this time before she woke up, and thankfully she was in a slightly better mood then after the previous ones.
Bye Bye pediatric imaging! We hope we won't see you again for another 3 years!

For more pictures of Rylen before and after surgery click here
                         To learn more about Craniosynostosis please visit www.craniocarebears.org

Comments

Post a Comment

Popular posts from this blog

Rylen's Sagittal Cranial Vault Reconstruction Surgery Recap

Image
Yay! Today, May 20th marks one week since Rylen had surgery to correct her skull. I wanted to write this for us to remember, for other cranio families who want to know what to expect and for RyK if she wants to know what her surgery was like. On Tuesday May 13th  we arrived at Oakland Kaiser at 6am. We were checked in and sent to pre-op. There they gave her some "happy juice" and daddy turned into the funniest guy around. We handed her off to a  nurse about 8am. Then we waited for our first phone call. At 10:20 her nurse called to tell us they had made the first cut, at 12:45 he called again to say she was doing well and they would begin to close. At 2:20 he called and told us to be waiting in the lobby for the surgeons to arrive. Finally around 3:00pm Dr. Pang and Dr. Zovickian came walking towards us. Everything went well and we could go to the PICU and see her! When we walked in we could hear her crying, we knew she woke up fighting mad. She was turning her self a...
Read more

How we discovered our baby had Craniosynostosis

How did we discover that our baby has Sagittal Craniosynostosis?  Two Thursday's ago we took Ry to get an  MRI because she has a y shaped gluetal cleft (which means her butt crack goes into a Y shape instead of an I shape) She also currently has a flat bruise like hemangioma about the size of a nickel on her butt, at the base of her spine area.  Both of those things can be an indicator that there could be a tethered spinal cord or another spinal issue. She has other hemangiomas but the pediatrician was only concerned if they appear in specific areas, and one of those to be concerned about is the area around the spinal cord. So they suggested we get an MRI to rule out any spinal cord issue. After her MRI we went to meet with a pediatric neurology doctor. She told us her MRI results were negative! yay! Which means that she does not have any issues with her spinal cord. However at that appointment we learned a new word that unfortunately will be part of our life ...
Read more