Guest Story- Harry's Craniosynostosis Journey

10 weeks before my daughter had her surgery, 13 month old Harry underwent his cranio reconstruction. With Harry's mother's permission, I am thrilled to share some of his journey!

When Harry was born in January of 2013 his parents noticed a ridge on the top of his head and a longer and more narrow head shape. Those things made it difficult for him to fit in newborn hats, but having never heard of craniosynostosis before the family wasn't alarmed. It wasn't until 8 month old Harry was admitted to a hospital for gastroenteritis that a nurse noticed something was wrong. A scan then confirmed that Harry had Sagittal Cranosynostosis. Harry's 7 and a 1/2 hour  surgery was performed on March 12th, 2014 in the Great Ormond Street Hospital in the United Kingdom.

Harry recovered well and is doing great! He is now 2 and less than a month away from his 1st cranioversary! His parents, Amy and Charlie, have done an amazing job spreading awareness for craniosynostosis. They have raised money for the hospital and have been sharing their story in magazines and news articles.

     Before Surgery

  At the hospital


Before and After Craniosynostosis Surgery 
      Harry at 2 years old, almost a year after surgery
              Some of the amazing ways that Amy and Charlie have been spreading awareness



Keep updated with Harry's journey by liking his facebook page 
https://m.facebook.com/profile.php?id=681984618489101




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